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2022 PRIM&R Annual Conference

Informed Consent

Emerging Challenges and Breaking Issues

Flexibility and Innovation in Research Oversight Processes

IRB Basics

Plenary XIII: What Can We Learn From Participant Experiences of Informed Consent Processes?

Thursday, December 15, 2022
1:30 PM – 2:45 PM ET
Location: Livestreamed
Livestreaming Session Icon CIP Accredited Human Subjects Research Thought Leader Series
This session will present empirical data about informed consent from the potential participant perspective. This perspective has the potential to challenge many of the assumptions of the research ethics field, such as what constitutes respect, when the decision to participate is made, what information is used and useful and from whom, and what people pay attention to and ignore in the process and why. Empirical studies that explore this area will be presented. Data from studies involving participants belonging to underserved groups will be highlighted.

Learning Objectives:

  • Challenge assumptions about how the informed consent process is received by potential participants
  • Learn about empirical data that indicates the aspects of the process that are valuable or problematic
  • Strategize ways to improve informed consent processes, particularly for underserved groups, in light of these data